Wednesday was probably, one of the best days of my life. We started the day off with sausage, bacon, eggs and beans ready for the big day. Got stuck in the snow whichwas 5 feet deep in places on our way to Ruka. Where we had booked to go Husky dog sledding. Upon arrival weContinue reading “Memories of an mnd patient.”
Tag Archives: mnd
Bastogne pt.2
As promised part 2 of our Bulge anniversary mini tour. I was the camera man for the trip, I’m assured by Alex the editor that there was approximately 83 videos from 1 minute to 10 to plough through. So lots of footage, this video doesn’t however show our trip to verdun and the other sites.Continue reading “Bastogne pt.2”
Holiday and things of a bucket list nature!
Rcently, my brother relocated to Helsinki, finland. So we decided that a visit was in order. Not just to see him (primary reason, he reads my blog) but to make memories. Memories, which in my opinion will last a lifetime. As you maybe aware, i have a viewpoint that is specific to not being aContinue reading “Holiday and things of a bucket list nature!”
Hospital and shit like that.
This might be seen as a rant, it kinda is, but also not. As you remember, i have rare conditions… rarer than how steak should be served properly. Now, this is just something I have to live with. I’m very fortunate that my Kidney doc is the best in the country and, for the mostContinue reading “Hospital and shit like that.”
“Work”
Its that time again, when I remember I have a blog and furthermore remember to post on it. This weekend I have been invited to join the Boss on a “work” trip abroad. We intend on visiting places that deal in tank tracks and restoration work that will more than likely help in a futureContinue reading ““Work””
Inspired, family and the wider world.
I won’t go into much specifics; if you’re a regular to my blog, you will know my views on things terminal. You’ll also know my opinion on things theological. However, Recently, a family member was recently diagnosed with terminal cancer. An important thing to remember about this particular family member is that he is aContinue reading “Inspired, family and the wider world.”
Management
I’ve been meaning to post for a while, So apologies for that. Over the last few weeks managing symptoms has become more important as things develop. I am finding that now physio therapy has ended, my hydrotherapy has also ended as well as our season at work. This makes management more difficult, largely because MyContinue reading “Management”
Some mothers do ‘ave ’em
It’s been a while since my last post & for that I apologise. It’s been a mentally draining few weeks. Family and friends are now pretty much all aware of my conditions and for the most part, people have been ace. Although.. there are sometimes, when people just don’t get it. It’s even more sadContinue reading “Some mothers do ‘ave ’em”
Keeping out of trouble.
Today (or at least this week) I have been reminded how easy it is fo become distracted by other things and to feel unproductive as a result. You may recall me sharing about the m3 Lee. A complete top to bottom inside and out restoration in 9 months. It’s almost sickening to see the resultContinue reading “Keeping out of trouble.”
Just the tonic.
As you maybe aware by now, there are some aspects of living with mnd that are copeable and some that I (personally) struggle with. Cramps have been a major problem for me for many weeks. The simple explanation is that my muscles that are wasted struggle to retain oxygen in the tissue, so when theyContinue reading “Just the tonic.”
my mnd shuffle 