It wasn’t so long ago that an update arrived here about an electric Wheelchair Optimus 2. As stated in that update, I felt I needed to encourage things a long when talking about outside mobility as waiting for the fundraiser to get anywhere near the £10K mark would take literal years I simply don’t have.Continue reading “Well now…”
Tag Archives: inspired
Busy busy busy
Well hello everyone! First of all let me start by doing as I normally do and apologise. I wait far too long between posts, but this time, there’s a reasonable explanation: I’m pregnant. Joke, I’m not. Nor is Toby, but I have recently made a baby in the form of a fundraiser idea. As manyContinue reading “Busy busy busy”
Coronation street.
So there’s a long standing British drama called Coronation Street and they have been working on a plot line about mnd. Now there’s a few things to say about it… It’s both good and bad. Not the acting, but the principle of the premise. It’s good to see the disease is on mainstream TV, butContinue reading “Coronation street.”
Living with it.
For most, living with mnd is a short-term sufferer thing. Now don’t get me wrong… I am very pleased to be in the category of long-term.. it’s the sufferer part that bugs me. I think people forget what it must be like for those affected to do everyday tasks. Ever since I started to takeContinue reading “Living with it.”
This fundraising lark.
This fundraising lark is bloody hard work. I’m caught in a perpetual loop of “this is begging” Vs “how the hell did they get £84k for a £4k vet bill” I kinda think this would be easier if I was furry. It’d certainly be easier to go viral. Cute and cuddly wins any race. JustContinue reading “This fundraising lark.”
Vlogging and fundraising.
So, some of you may have seen on my social media that I am looking to fundraise. The reasons are simple: As a patient with ever growing mobility issues, the harsh reality of every day tasks is that they just get worse. Many of my regular subscribers will already know my views on certain things.Continue reading “Vlogging and fundraising.”
2023
Well, here we are, 2023 and I’ve been absolutely shite at posting on my blog. You’ll be eased to know there are about 6 draft posts from the year, none of which made it to the actual blog for reasons that I’ll not go into details with – other than to say, I didn’t feelContinue reading “2023”
Update
Hello everyone and first; Sorry. Sorry its been a long time since I posted anything, life has trundle by and I’ve written and rewritten the post for the last few months. Not much seems to have happened since August, and yet, once again it feels like so much has. The annoying thing with this yearContinue reading “Update”
Dealing with things.
Ok, so.. quite a few Posts ago now I’ve always said certain things about how I feel regards life being good. I Stand by that, I really do. However. I’ve always tried to avoid (so far) sharing about the things that are not so nice. I spoke last time about mixing with other mnd sufferersContinue reading “Dealing with things.”
Others with mnd
I have recently started engaging with other people affected by MND outside of my family circle. As mentioned previously in other posts, the blogs are somewhat one sided. It is very interesting to hear others comme ting and talking about the other side of things. You know, the S word? Weirdly, it’s kinda accepted differentlyContinue reading “Others with mnd”
my mnd shuffle 