It wasn’t so long ago that an update arrived here about an electric Wheelchair Optimus 2. As stated in that update, I felt I needed to encourage things a long when talking about outside mobility as waiting for the fundraiser to get anywhere near the £10K mark would take literal years I simply don’t have.Continue reading “Well now…”
Category Archives: Activities
Happy New Year!
You may have noticed the edit of the main gogundme page, but for those who haven’t here’s an update:My beloved Terrain Hopper that I wanted so much does not look like a viable thing anymore, as my needs evolve and change, so do my requirements for mobility and, whilst I’d LOVE to be going DeerContinue reading “Happy New Year!”
The boys 18th, travel and transport.
So I am desperately trying to keep this updated with thoughts.. traditionally I’m shit at this, but the reason for quiet this time has been family commitments to my eldest, Pete. Who turned 18 last weekend. We assured him last year he could do anything he wanted to celebrate… party…piss up… strippers… holiday… anything. TurnsContinue reading “The boys 18th, travel and transport.”
Busy busy busy
Well hello everyone! First of all let me start by doing as I normally do and apologise. I wait far too long between posts, but this time, there’s a reasonable explanation: I’m pregnant. Joke, I’m not. Nor is Toby, but I have recently made a baby in the form of a fundraiser idea. As manyContinue reading “Busy busy busy”
Spring break & a Birthday Rant!
Woohoo spring break… Or at least those in the USA would be screaming that! I however spent the week at the very top of Scotland, a solid -2/-6°C all week, sometimes snowing… But mostly ok actually. Granted this was curved by the somewhat luxurious nature of the hot tub which held itself at 38°C OneContinue reading “Spring break & a Birthday Rant!”
This fundraising lark.
This fundraising lark is bloody hard work. I’m caught in a perpetual loop of “this is begging” Vs “how the hell did they get £84k for a £4k vet bill” I kinda think this would be easier if I was furry. It’d certainly be easier to go viral. Cute and cuddly wins any race. JustContinue reading “This fundraising lark.”
Vlogging and fundraising.
So, some of you may have seen on my social media that I am looking to fundraise. The reasons are simple: As a patient with ever growing mobility issues, the harsh reality of every day tasks is that they just get worse. Many of my regular subscribers will already know my views on certain things.Continue reading “Vlogging and fundraising.”
2023
Well, here we are, 2023 and I’ve been absolutely shite at posting on my blog. You’ll be eased to know there are about 6 draft posts from the year, none of which made it to the actual blog for reasons that I’ll not go into details with – other than to say, I didn’t feelContinue reading “2023”
Things…
So, it’s been that time again when O have to go for the MOT with the miriad of specialists. It’s always an anxious time because of the nature of the diseases, it always seems like I’m walking (more hobbling) on a knife edge. I hate it. But it is what it is… I needed toContinue reading “Things…”
Time.
So it’s been a year since lockdown and now things seem like they are getting back to some sort of normality. I’ve been writing thoughts and feels down in the last 3 months, but not published them.. this is for a host of reasons, but mainly this: when you suffer from rare diseases like mine,Continue reading “Time.”
my mnd shuffle 