So I am desperately trying to keep this updated with thoughts.. traditionally I’m shit at this, but the reason for quiet this time has been family commitments to my eldest, Pete. Who turned 18 last weekend. We assured him last year he could do anything he wanted to celebrate… party…piss up… strippers… holiday… anything. TurnsContinue reading “The boys 18th, travel and transport.”
Tag Archives: creative
Busy busy busy
Well hello everyone! First of all let me start by doing as I normally do and apologise. I wait far too long between posts, but this time, there’s a reasonable explanation: I’m pregnant. Joke, I’m not. Nor is Toby, but I have recently made a baby in the form of a fundraiser idea. As manyContinue reading “Busy busy busy”
Coronation street.
So there’s a long standing British drama called Coronation Street and they have been working on a plot line about mnd. Now there’s a few things to say about it… It’s both good and bad. Not the acting, but the principle of the premise. It’s good to see the disease is on mainstream TV, butContinue reading “Coronation street.”
Living with it.
For most, living with mnd is a short-term sufferer thing. Now don’t get me wrong… I am very pleased to be in the category of long-term.. it’s the sufferer part that bugs me. I think people forget what it must be like for those affected to do everyday tasks. Ever since I started to takeContinue reading “Living with it.”
This fundraising lark.
This fundraising lark is bloody hard work. I’m caught in a perpetual loop of “this is begging” Vs “how the hell did they get £84k for a £4k vet bill” I kinda think this would be easier if I was furry. It’d certainly be easier to go viral. Cute and cuddly wins any race. JustContinue reading “This fundraising lark.”
Others with mnd
I have recently started engaging with other people affected by MND outside of my family circle. As mentioned previously in other posts, the blogs are somewhat one sided. It is very interesting to hear others comme ting and talking about the other side of things. You know, the S word? Weirdly, it’s kinda accepted differentlyContinue reading “Others with mnd”
Unintentional problems
So, it’s that time when I need to convince plod that it’s ok for me to have firearms. Now this isn’t a problem. In fact, it should be straightforward. The thing is though, amongst the confusing pandemic – medical forms are taking a lifetime to arrive and of course, diagnosis of neurological conditions is aContinue reading “Unintentional problems”
Memories of an mnd patient.
Wednesday was probably, one of the best days of my life. We started the day off with sausage, bacon, eggs and beans ready for the big day. Got stuck in the snow whichwas 5 feet deep in places on our way to Ruka. Where we had booked to go Husky dog sledding. Upon arrival weContinue reading “Memories of an mnd patient.”
Bastogne pt.2
As promised part 2 of our Bulge anniversary mini tour. I was the camera man for the trip, I’m assured by Alex the editor that there was approximately 83 videos from 1 minute to 10 to plough through. So lots of footage, this video doesn’t however show our trip to verdun and the other sites.Continue reading “Bastogne pt.2”
Holiday and things of a bucket list nature!
Rcently, my brother relocated to Helsinki, finland. So we decided that a visit was in order. Not just to see him (primary reason, he reads my blog) but to make memories. Memories, which in my opinion will last a lifetime. As you maybe aware, i have a viewpoint that is specific to not being aContinue reading “Holiday and things of a bucket list nature!”
my mnd shuffle 