So there’s a long standing British drama called Coronation Street and they have been working on a plot line about mnd. Now there’s a few things to say about it… It’s both good and bad. Not the acting, but the principle of the premise. It’s good to see the disease is on mainstream TV, butContinue reading “Coronation street.”
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Neurophysiotherapy.
UPDATE: So, as some will be aware, I visited the physio last week. It’s noteworthy that my physio (Amy) has been one of the most consistent people throughout my ordeal over the last 4 years.I tend to go bi-anually these days as it’s seldom worth the frequency unless something major happens. This months check upContinue reading “Neurophysiotherapy.”
It’s been a while.
Once again, apologies for the tardiness. I can safely say that vaccines do indeed, work and that so far, despite fates best efforts to cut my life short – so far it has failed! So, yay me .. I guess. Anyway, moving on. I’m hitting that time of year where everyone has hit the gymContinue reading “It’s been a while.”
Update
Hello everyone and first; Sorry. Sorry its been a long time since I posted anything, life has trundle by and I’ve written and rewritten the post for the last few months. Not much seems to have happened since August, and yet, once again it feels like so much has. The annoying thing with this yearContinue reading “Update”
Dealing with things.
Ok, so.. quite a few Posts ago now I’ve always said certain things about how I feel regards life being good. I Stand by that, I really do. However. I’ve always tried to avoid (so far) sharing about the things that are not so nice. I spoke last time about mixing with other mnd sufferersContinue reading “Dealing with things.”
Updating the world wide whatsit..
I really am shit at this, so my apologies for the lack of updates on here.. As we begin to return to slightly normal life post lockdown, I am slowly becoming more and more less mobile. It could be as simple as a lack of exercise, but I was warned that things could go thisContinue reading “Updating the world wide whatsit..”
Unintentional problems
So, it’s that time when I need to convince plod that it’s ok for me to have firearms. Now this isn’t a problem. In fact, it should be straightforward. The thing is though, amongst the confusing pandemic – medical forms are taking a lifetime to arrive and of course, diagnosis of neurological conditions is aContinue reading “Unintentional problems”
Bastogne pt.2
As promised part 2 of our Bulge anniversary mini tour. I was the camera man for the trip, I’m assured by Alex the editor that there was approximately 83 videos from 1 minute to 10 to plough through. So lots of footage, this video doesn’t however show our trip to verdun and the other sites.Continue reading “Bastogne pt.2”
Hospital and shit like that.
This might be seen as a rant, it kinda is, but also not. As you remember, i have rare conditions… rarer than how steak should be served properly. Now, this is just something I have to live with. I’m very fortunate that my Kidney doc is the best in the country and, for the mostContinue reading “Hospital and shit like that.”
Bastogne pt.1
Following my “business” trip last week, I thought I’d show you a bit of what we do and why. We started off leaving at 05:30 for dover. With our trailered jeep in tow we headed for the south. Having got to the port.. British police ask us “so, you didn’t fancy stopping for french customsContinue reading “Bastogne pt.1”
my mnd shuffle 