For most, living with mnd is a short-term sufferer thing. Now don’t get me wrong… I am very pleased to be in the category of long-term.. it’s the sufferer part that bugs me. I think people forget what it must be like for those affected to do everyday tasks. Ever since I started to takeContinue reading “Living with it.”
Tag Archives: God
Dealing with things.
Ok, so.. quite a few Posts ago now I’ve always said certain things about how I feel regards life being good. I Stand by that, I really do. However. I’ve always tried to avoid (so far) sharing about the things that are not so nice. I spoke last time about mixing with other mnd sufferersContinue reading “Dealing with things.”
Others with mnd
I have recently started engaging with other people affected by MND outside of my family circle. As mentioned previously in other posts, the blogs are somewhat one sided. It is very interesting to hear others comme ting and talking about the other side of things. You know, the S word? Weirdly, it’s kinda accepted differentlyContinue reading “Others with mnd”
Memories of an mnd patient.
Wednesday was probably, one of the best days of my life. We started the day off with sausage, bacon, eggs and beans ready for the big day. Got stuck in the snow whichwas 5 feet deep in places on our way to Ruka. Where we had booked to go Husky dog sledding. Upon arrival weContinue reading “Memories of an mnd patient.”
Inspired, family and the wider world.
I won’t go into much specifics; if you’re a regular to my blog, you will know my views on things terminal. You’ll also know my opinion on things theological. However, Recently, a family member was recently diagnosed with terminal cancer. An important thing to remember about this particular family member is that he is aContinue reading “Inspired, family and the wider world.”
Some mothers do ‘ave ’em
It’s been a while since my last post & for that I apologise. It’s been a mentally draining few weeks. Family and friends are now pretty much all aware of my conditions and for the most part, people have been ace. Although.. there are sometimes, when people just don’t get it. It’s even more sadContinue reading “Some mothers do ‘ave ’em”
V for victory.
This weekend I’ve been camping in a 1940’s re enactment. We’ve been there with some newly restored armour: an M3 Lee. Which is the only one in the UK. Like all shows that we do, it consists of meeting members of the public and enthusiastic people who love to see armour and all things heavy.Continue reading “V for victory.”
Is life really a piece of shit??
In short; “Life’s a piece of shit, when you look at it!…” For those more familiar with me on my Facebook, you maybe aware of some of my posts that highlight how good my life is. you’ll also know that above all else, I value family, honesty and integrity. My pops has the same beliefs,Continue reading “Is life really a piece of shit??”
Welcome.
My name is Dave, I am 37 and have been recently diagnosed with a number of rare diseases. Firstly, a rare form of Kidney disease called: Membranous Glomerulonephritis- a rare disease that effects 1/200,000 people. It’s where my immune system is (in easy-speak) rejecting my kidneys, causing them to hemorrhage protein. It comes under theContinue reading “Welcome.”
my mnd shuffle 