It wasn’t so long ago that an update arrived here about an electric Wheelchair Optimus 2. As stated in that update, I felt I needed to encourage things a long when talking about outside mobility as waiting for the fundraiser to get anywhere near the £10K mark would take literal years I simply don’t have.Continue reading “Well now…”
Tag Archives: Als
Happy New Year!
You may have noticed the edit of the main gogundme page, but for those who haven’t here’s an update:My beloved Terrain Hopper that I wanted so much does not look like a viable thing anymore, as my needs evolve and change, so do my requirements for mobility and, whilst I’d LOVE to be going DeerContinue reading “Happy New Year!”
The boys 18th, travel and transport.
So I am desperately trying to keep this updated with thoughts.. traditionally I’m shit at this, but the reason for quiet this time has been family commitments to my eldest, Pete. Who turned 18 last weekend. We assured him last year he could do anything he wanted to celebrate… party…piss up… strippers… holiday… anything. TurnsContinue reading “The boys 18th, travel and transport.”
Busy busy busy
Well hello everyone! First of all let me start by doing as I normally do and apologise. I wait far too long between posts, but this time, there’s a reasonable explanation: I’m pregnant. Joke, I’m not. Nor is Toby, but I have recently made a baby in the form of a fundraiser idea. As manyContinue reading “Busy busy busy”
Spring break & a Birthday Rant!
Woohoo spring break… Or at least those in the USA would be screaming that! I however spent the week at the very top of Scotland, a solid -2/-6°C all week, sometimes snowing… But mostly ok actually. Granted this was curved by the somewhat luxurious nature of the hot tub which held itself at 38°C OneContinue reading “Spring break & a Birthday Rant!”
Coronation street.
So there’s a long standing British drama called Coronation Street and they have been working on a plot line about mnd. Now there’s a few things to say about it… It’s both good and bad. Not the acting, but the principle of the premise. It’s good to see the disease is on mainstream TV, butContinue reading “Coronation street.”
Living with it.
For most, living with mnd is a short-term sufferer thing. Now don’t get me wrong… I am very pleased to be in the category of long-term.. it’s the sufferer part that bugs me. I think people forget what it must be like for those affected to do everyday tasks. Ever since I started to takeContinue reading “Living with it.”
This fundraising lark.
This fundraising lark is bloody hard work. I’m caught in a perpetual loop of “this is begging” Vs “how the hell did they get £84k for a £4k vet bill” I kinda think this would be easier if I was furry. It’d certainly be easier to go viral. Cute and cuddly wins any race. JustContinue reading “This fundraising lark.”
Neurophysiotherapy.
UPDATE: So, as some will be aware, I visited the physio last week. It’s noteworthy that my physio (Amy) has been one of the most consistent people throughout my ordeal over the last 4 years.I tend to go bi-anually these days as it’s seldom worth the frequency unless something major happens. This months check upContinue reading “Neurophysiotherapy.”
Vlogging and fundraising.
So, some of you may have seen on my social media that I am looking to fundraise. The reasons are simple: As a patient with ever growing mobility issues, the harsh reality of every day tasks is that they just get worse. Many of my regular subscribers will already know my views on certain things.Continue reading “Vlogging and fundraising.”
my mnd shuffle 