‘Tis the season and all that jazz… It’s been a while for the handful of people that follow this and I’m confident you have forgotten about it anyway. It’s been a while since I posted and not much interesting has happened as far as I am concerned anyway. This coming year marks the time inContinue reading “Legacy.”
Tag Archives: mnd
The big Low.
So, as many of you man have realised by now, I’m not one for feeling sorry for myself. That said, the majority of my mental health issues, doesn’t come from having a terminal disease: it comes from the lifestyle change that inevitably follows it. I think we’d all agree this is “life changing” or atContinue reading “The big Low.”
Things…
So, it’s been that time again when O have to go for the MOT with the miriad of specialists. It’s always an anxious time because of the nature of the diseases, it always seems like I’m walking (more hobbling) on a knife edge. I hate it. But it is what it is… I needed toContinue reading “Things…”
Time.
So it’s been a year since lockdown and now things seem like they are getting back to some sort of normality. I’ve been writing thoughts and feels down in the last 3 months, but not published them.. this is for a host of reasons, but mainly this: when you suffer from rare diseases like mine,Continue reading “Time.”
Update
Hello everyone and first; Sorry. Sorry its been a long time since I posted anything, life has trundle by and I’ve written and rewritten the post for the last few months. Not much seems to have happened since August, and yet, once again it feels like so much has. The annoying thing with this yearContinue reading “Update”
Dealing with things.
Ok, so.. quite a few Posts ago now I’ve always said certain things about how I feel regards life being good. I Stand by that, I really do. However. I’ve always tried to avoid (so far) sharing about the things that are not so nice. I spoke last time about mixing with other mnd sufferersContinue reading “Dealing with things.”
Others with mnd
I have recently started engaging with other people affected by MND outside of my family circle. As mentioned previously in other posts, the blogs are somewhat one sided. It is very interesting to hear others comme ting and talking about the other side of things. You know, the S word? Weirdly, it’s kinda accepted differentlyContinue reading “Others with mnd”
Updating the world wide whatsit..
I really am shit at this, so my apologies for the lack of updates on here.. As we begin to return to slightly normal life post lockdown, I am slowly becoming more and more less mobile. It could be as simple as a lack of exercise, but I was warned that things could go thisContinue reading “Updating the world wide whatsit..”
Unintentional problems
So, it’s that time when I need to convince plod that it’s ok for me to have firearms. Now this isn’t a problem. In fact, it should be straightforward. The thing is though, amongst the confusing pandemic – medical forms are taking a lifetime to arrive and of course, diagnosis of neurological conditions is aContinue reading “Unintentional problems”
Mobility issues.
It’s been a while and for that I apologise. I’m sure all 4 of you are worried sick. (Jk, probably not even that many subs) I recently visited my physiotherapist for a check in. Unlike my doctor specialists, she is probably the most useful person I’ve seen. In her years of practice I am herContinue reading “Mobility issues.”
my mnd shuffle 